Hello cancer Archives - The Myeloma Crowd

Immune System Status May Be Why Myeloma Incidence Increases With Age

A new study has found that changes to the immune system as we age may play a bigger role in the development of cancer than the acquisition of genetic mutations according to Australian researchers from the University of Dundee. It is known that cancer requires several mutations to become active, so much of today's research [...]

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ASH 2017: Myeloma Patients Need a Flu Shot Booster!

Researchers found in a study called the “Shivering 2 Trial” during last year’s flu season, that persons with plasma cell disorders, i.e.multiple myeloma, do not get much protection from the flu even after getting the high dose shot.  When we have compromised immunity to start with and are often older, or have other health challenges, [...]

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KSL News: Utah Family Turns Rexburg Eclipse Camp Site Into Fundraising Tool For Cancer Treatment

Originally seen on KSL.  Article by Andrew Adams, KSL TV REXBURG, Idaho — There are a lot of open fields where campers can park an RV, pitch a tent and watch Monday’s total eclipse. But one family in Rexburg is drawing interest from across the country and around the world for the cause it represents. With [...]

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Hope vs. Hype in New Cancer Therapies

Over the last few years, cancer patients have become ever hopeful that a cure is around the corner. "Breakthrough designations" and "fast-tracked" drug statuses have helped fuel this excitement and bring needed treatments to the clinic faster. For example, new therapies that use the immune system to kill cancer cells look incredibly promising as do [...]

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A Cancer Caregiver’s Open Letter to Family and Friends: Please Understand, Life After Cancer is Different

Every patient agrees that once you've been diagnosed with cancer, there is no going back to your old life. No matter how badly we as patients, caregivers or family members want to do this, our futures are forever changed. The change may require some minor or perhaps major adjustments to our everyday lives. It's a [...]

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Myeloma 101: How To Pick A Multiple Myeloma Doctor

Choosing a doctor to treat your multiple myeloma is one of the most important decisions you will make. Although a hematologist or oncologist can administer care, myeloma patients will live longer, according to the Mayo Clinic, if they are seen by a multiple myeloma specialist. Those who treat myeloma exclusively are able to stay up-to-date [...]

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Fighting Cancer Is Hard. 15 Tips for Living With Chronic Illness

BY KIM GILES Find the original article on KSL.  CC Scott said, “The human spirit is stronger than anything that can happen to it.” I believe this is true, so the first thing I want you to know is that you can have joy in spite of this, and you can beat discouragement most of [...]

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Is There one Sugar That is Better (or less bad) Than Others for Cancer Patients?

Scientific research is inconclusive on whether sugar impacts the growth of cancer. It doesn't mean, however, that cancer patients should go hog-wild on sweets. Myeloma patients, for example,  should be cautious with sugars especially when taking steroids (as steroids can induce diabetes or sugar sensitivities). Jean Lamantia discusses the impact of added sugars on your [...]

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Sugar’s Smoke Screen and Cancer Cell Immunity

Researchers may have a sweet new way to help the immune system go after cancer cells. In a recent article in Science News, Stanford chemist Carolyn Bertozzi shares insights about how cancer cells evade the immune system through sugar molecule proteins. "The cell surface is basically coated with sugars,” says Carolyn Bertozzi, a chemist at Stanford [...]

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Don’t Obsess About Cancer Causes

BY GREG BROZEIT Researchers found that two thirds of cancer-causing cell mutations occur because of “bad luck.” Harper’s Magazine Weekly Review, March 28, 2017 That’s a bit of an oversimplification about a recently published paper in Science magazine.  So, if you’re a cancer patient, should this interest you?  Yes and no. Yes if you are intellectually [...]

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Nanotechnology: Cancer’s Fantastic Voyage?

BY GREG BROZEIT Progress in science depends on new techniques, new discoveries and new ideas, probably in that order. Sydney Brenner, Nobel Laureate “To see,” the poet Paul Valéry once wrote, “is to forget the name of the things that one sees.”  To see DNA is to forget its name or its chemical formula.  Like [...]

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To Dye Hair or Not? Does Coloring Your Locks Cause Cancer?

BY LIZZY SMITH My hair is finally growing back after many months of baldness. During the time of “no hair” I wore wigs or caps, no exceptions. And then about 45 days post melphalan, I started seeing the first signs that my hair was growing. Hooray! Last month, we went to Costa Rica and Nicaragua [...]

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Tips for Staying Sun-safe During Summer Months (This is Crucial for the Myeloma Patient!)

BY LIZZY SMITH The Journal of the American Academy of Dermatology’s recent study shows that a majority of Americans do not know how to properly apply sunscreen. You can read it here.  Even those with a history of skin cancer are not as savvy as one might think. And we myeloma patients must be extra vigilant in protecting [...]

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Radon Levels Increase Blood Cancer Occurrence in Women

Radon could be linked with blood cancers in women, according to a recent article in MedlinePlus. Radon is naturally occurring gas and highly radioactive element discovered by English physicist Ernest Rutherford in 1899. The Surgeon General has warned that radon is the second leading cause of lung cancer in the United States today. In [...]

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Clinical Trial: Celgene Launches Study of CC-122 for Myeloma Patients Not Responding To Standard Therapies

Celgene is conducting a study using a new drug called CC-122 (trial ID MM-0209). The purpose is to test the safety and activity of a new class of experimental drugs (Pleiotropic Pathway Modulator) in myeloma patients who are not responding to standard therapies. The study will also seek to determine the appropriate dosing level and regimen for [...]

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A Personal Story of Surviving My Third Stem Cell Transplant

BY LIZZY SMITH I have completed my stem cell transplant and lived to tell the tale. This was my third-- in 2012 I had tandem auto stem cell transplants within a five month period. I sailed through those. While I didn't feel great, and I hated the hair loss, I never developed complications or fevers. [...]

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Myeloma Patients of UAMS Benefit From Ministry That Provides Short-term Housing & Support

You’re in the prime of your life. You have a beautiful family, and a career you are passionate about. Suddenly, a diagnosis turns your world upside down. And the best treatment is in another state, hundreds of miles from home. unimaginable situation has been lived out by the thousands of cancer patients who have traveled [...]

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Hospital Food, Cancer & Healing. Attempting the Impossible

BY LIZZY SMITH So I spent 15 days in the hospital recently battling pneumonia. One of the most horrible parts of being in the hospital was the food. No joke, it was making my physically ill. First, I was put on a neutoropenic diet, which means no fresh fruits and veggies unless they come in [...]

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Part 2: Cancer & Nutrition… Does Sugar Feed Cancer?

BY JEAN LAMANTIA In Part 1 of my Does Sugar Feed Cancer? series exploring the connection between sugar and cancer, I answered the questions What is one connection between sugar and cancer? And should I be on a Ketogenic diet? To find out the answers to these questions and learn how you can take action [...]

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For Us Myeloma Survivors, We Must Learn to Ask For Help When We Need It

BY LIZZY SMITH One lesson I've learned late in life is that I need to learn to ask for help when I need it. I cannot do this battle alone and I have so many amazing family and friends who are ready, willing and eager to pitch in... if they only knew that I needed [...]

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BREAKING NEWS: FDA Approves Darzalex (daratumumab) for Patients with Previously Treated Myeloma

Today the U.S. Food and Drug Administration granted accelerated approval for Darzalex (daratumumab) to treat patients with multiple myeloma who have received at least three prior treatments. Darzalex is the first monoclonal antibody approved for treating multiple myeloma. Multiple myeloma is a form of blood cancer that occurs in infection-fighting plasma cells (a type of [...]

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SCT Postcard From the Edge: Surviving My 5-Day Hospital Stay For Myeloma

BY LIZZY SMITH Is there anything more emotionally or physically taxing than a stem cell transplant (SCT)? I know there are many of us myeloma warriors out there who must answer "no." SCTs are intense and hard, emotionally and physically. And I knew this because I did tandem transplants in 2012. Honestly, I was so [...]

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Patient Power: How To Handle The Emotional Aspects of a Cancer Diagnosis

Dealing with Anger and Stress After a Cancer Diagnosis from Patient Power on Vimeo. Few things are more frightening than hearing the words "You have cancer." Anger. Depression. Sadness. Fear. These are just a few emotions one contends with at diagnosis and beyond. Here are tips from Patient Power to help identify needs and cope. [...]

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Myeloma Survivor Lizzy Smith Enters Stem Cell Transplant #3 With A Skydive

BY LIZZY SMITH Not long ago, I shared with you all my feelings on clinical trials and my willingness to embark on one. Yep, still a BIG HUGE FAN of clinical trials. You can read my opinion right here at Do I Look Like A Guinea Pig that was published on Myeloma Crowd not long ago. [...]

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Why Do Cancer Survivors Eat So Poorly After Treatment?

Well here is an interesting study about nutrition and cancer. Why do we cancer survivors eat less healthy than others? Nutrition is a critical component to surviving treatment, healing, and living as well as possible in the future. Ignoring what we put in our mouth is a big mistake. We can guess that some of [...]

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Why Elephants Rarely Get Cancer & What It Means For The Future of Treating Disease In Humans

Why elephants rarely get cancer is a mystery that has stumped scientists for decades. A study led by researchers at Huntsman Cancer Institute (HCI) at the University of Utah and Arizona State University, and including researchers from the Ringling Bros. Center for Elephant Conservation, may have found the answer. According to the results, published [...]

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It’s Flu Season. 14 Tips For Staying Healthy

With flu and cold season on its way, it is extra important that cancer survivors and caretakers alike take extra precautions to avoid getting sick. Here are our top tips: Wash your hands: Take your time scrubbing your hands with soap. Try reciting the alphabet as you scrub, as it will give you a good [...]

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U.S. Cancer Doctors Drop Pricey Drugs With Little Or No Effect

BY DEENA BEASLEY for Reuters U.S. oncologists, aware that patients are paying more of the costs of expensive cancer drugs, are increasingly declining to prescribe medicines that have scant or no effect, even as a last resort. At least half a dozen drugs, including colon cancer treatments Cyramza, from Eli Lilly & Co, and Stivarga, [...]

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Novel Plan to Curb Drug Costs Seeks Candidates’ Attention

BY RICARDO ALONSO-ZALDIVAR (for the AP) Consumer-friendly ratings of the benefits of new drugs. Limits on what patients pay. Requiring drug companies to disclose how much they actually spend on research. With the public concerned about the high cost of new medications, these are some of the proposals offered Friday by a policy center often [...]

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Tech Options Helping Patients Wrest Control From Doctors. How Does This Empower the Myeloma Patient?

The following interview with Dr. Eric Topol author of "The Patient Will See you Now" is a rather interesting take on how patients can become far more empowered than ever thanks to the digital information right before us via smartphones and access to the internet. What does this have to do with cancer and multiple myeloma? [...]

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Bucket Lists Are For The Living. Write Yours & Get To Work On Having Fun!

BY LIZZY SMITH One day in 2012, I was sitting in a windowless infusion room getting high-dose chemotherapy. I was wearing a wig. I had no eyelashes and no eyebrows. I felt pretty crappy. I had lost a ton of weight. Typically at 5 feet 8 inches tall, I weigh about 135 pounds but had plunged [...]

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Myeloma is Tough But We (Can) Be Tougher. 10 Tips for Getting Stronger & Healthier

BY LIZZY SMITH As always, discuss dietary restrictions and changes, and physical activity with your doctor prior to making any changes to your lifestyle. We cancer survivors and caregivers put up with enormous stress in our lives—from crazy hard treatments, to side effects, to managing countless appointments and drugs, and the emotional ups and downs of illness. [...]

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Vitamin B6 Levels At Its Impact On The Cancer Survivor’s Immune System

As always, consult with your doctor prior to taking any dietary supplements or changing your diet. BY JEAN LAMANTIA What is Vitamin B6? Vitamin B6 is one of the water soluble vitamins. This means that it is found in the water component of the food we eat and not the fat or oil portion. It also [...]

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PRESS RELEASE: Cancer Crowdsourcing Initiative Winners Selected

From the PR Newswire SALT LAKE CITY, Aug. 19, 2015 /PRNewswire-USNewswire/ -- The Myeloma Crowd Research Initiative (MCRI), an unprecedented collaboration of cancer researchers and patient advocates, today announced the two winners of its first-ever crowdsourcing and patient-led initiative to fund research in high-risk multiple myeloma, a rare malignancy of plasma cells. MCRI has pledged [...]

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6 Important Lessons From A Caregiver: Sticking Up For Our Patients

BY KALA QUINTANA When my father was in ICU at George Washington University Hospital in Washington, DC for a month, the chief resident was leading students through the ward. I stepped out of the room and watched as he coached the medical residents through my father's case. It was dire and he was unconscious. The chief resident that touched [...]

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How Life’s Problems Can Lead To Personal Growth (& Even Happiness)

BY KIM GILES Most of us think what we want in life is peace and security, the elimination of all problems, pains or worries. If we could just get rid of the problems, pains and worries then we would be happy. Because of this belief we are constantly trying to solve the problems, eliminate the [...]

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Why Salmon Is Fabulous For The Cancer Survivor & A Deliciously Healthy Recipe

Always speak with your doctor prior to making any dietary changes or taking supplements. BY JEAN LAMANTIA Why should a cancer survivor enjoy Salmon with Grainy Mustard and Wheat Germ Topping? Let me explain… One of the top nutrients for immune function is omega-3 fatty acid. This makes omega-3 fatty acid a MUST for cancer [...]

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118 Cancer Experts Call For Curbs On Rapidly Rising Drug Prices

BY LENNY BERNSTEIN for The Washington Post Top cancer experts called Thursday for steps to curb the rapidly escalating price of oncology drugs, warning that the current trajectory “will affect millions of Americans and their immediate families, often repeatedly.” The commentary in the journal Mayo Clinic Proceedings, signed by 118 physicians from cancer centers across [...]

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Lawmakers Begin Challenging Exorbitant Costs of Some Cancer Drugs

BY NOEL BRINKERHOFF & DANNY BIEDERMAN for Allgov.com Stratospheric drug costs have prompted lawmakers in six states to introduce legislation that would force pharmaceutical companies to disclose how much they spend to develop new medicines—and how much they’re profiting from them. Cost transparency bills have been introduced in New York, California, Massachusetts, North Carolina, Oregon and [...]

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Probiotics and Prebiotics: Their Role In Supporting Your Immune System

As always, discuss taking any supplements or making changes to your diet with your oncologist first. BY JEAN LAMANTIA, cancer survivor and registered dietitian Today we are talking about probiotics and prebiotics and their role in supporting your immune system. Let’s get started with some important terms and definitions. What is Probiotic? The first important [...]

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A Multiple Myeloma Diagnosis Is Tough. But Despair Is Optional. Tips For Coping

BY KIM GILES, Life Coach The one thing you absolutely must know is that “despair is optional” even when things are really bad. You have the power to change how you feel about this situation. If you choose to claim that power. You don’t have to experience this situation in a negative, defeated and painful [...]

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Multiple Myeloma Patient Shares Opinion On The Affordable Care Act

BY LIZZY SMITH Since the Affordable Care Act (ACA) seems to be a hot topic again, I wanted to share an Op-Ed piece I wrote for the Chicago Tribune last year. It details my story of almost become uninsured in the midst of my multiple myeloma diagnosis. This should never happen to anyone, much less [...]

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